Clik here to view.
Taking Back Control Over My Moving Limbs at Dystonia Zoo Walk Providence
This Saturday, my husband and I are heading to Roger Williams Zoo in Providence, RI, for the very first time, and I can’t even explain how much I’m looking forward to this unique experience. It’s been...
View ArticleClik here to view.
The Ongoing DINE-CD Trial to Study Whether Diet Might Help Manage Mild to...
With an estimated 1.6 million people living with either Crohn’s disease or ulcerative colitis in the United States, there is increasing need to research safe and effective ways to manage debilitating...
View ArticleClik here to view.
Riding the Body’s Ebbs and Flows: The Bumpy Road To Recovery After A D&C
A month ago today, I went under anesthesia for what is misleadingly classified as a minor surgery to try to get to the bottom of abnormal bleeding from my lady parts. In between two trips and pre-op...
View ArticleClik here to view.
A Sensory Retrospective of Gratitude on a Sleeper of a Year
This humble, human vessel I call my own always seems to be brimming over with an abundance of gratitude this time of year. As a December baby, the first day of New Year on the Gregorian calendar...
View ArticleClik here to view.
She’s Climbing the Stairway To Steady Health
Nine months ago, when my husband and I were moving into the three-story condominium we’re currently renting, I was more than a wee bit concerned with how I’d navigate all those levels. My office would...
View ArticleClik here to view.
Seeking the Road to Recovery When Eyes Cannot See Clearly
Two months ago, my life with dystonia ‘got flipped turned upside down’ and i’ve been on a rollercoaster ride of recovery from it ever since. Seemingly overnight, my plush California King-sized bed...
View ArticleClik here to view.
Reclaiming When I Feel Most Alive
I feel most alive amidst The lilting arpeggio of birdsong– Shoes crunching through scattered leaves And my eyes lifted to a sky shimmering With a web of verdant limbs I feel most alive when My fingers...
View ArticleClik here to view.
Loving My Body Through A Decade Living With Dystonia
Src: istockphoto.com/portfolio/fona2 Ten years a slave– To tangled limbs And a torquing spine, To a broken medical system And neural network gone offline Ten years an observer– Of the quirky, jerky...
View ArticleClik here to view.
Looking Back With Grief and Gratitude On Last Year’s Road to Recovery
Putting on a Brave Face At the Hospital A year ago yesterday, tests to monitor my heart landed me in the hospital with full-body muscle contractions, quirky contortions, and breathing difficulties,...
View ArticleClik here to view.
Why I’ll Hurry Up And Wait On My Way to Healing Recovery
Hurry up and wait has become the tireless refrain running through my brain as of late, ever since I restarted the deep-dive investigation into a medical mystery that has haunted the lion’s share of my...
View Article
